Our patient stories are getting a new home. To keep up with all the latest and greatest from Boston Children’s Hospital, you can now visit our new all-Boston-Children’s hub, Discoveries.
The new site will also keep you up to date on clinical updates, research and innovation news, our favorite photos and videos, and happenings within our community.
We hope you’ll bookmark Discoveries and visit often. In the meantime, the Thriving blog will remain online as an archive for stories published from early May 2019 and earlier.
Rebecca Gold’s parents, Karen and Adam, had just dropped her off at sleepaway
camp in Pennsylvania. They hadn’t
even completed the drive back to Connecticut when they received a frightening
call: Their 12-year-old daughter had collapsed to the floor, vomiting and
unable to move her limbs. She was now at a nearby children’s hospital in Delaware. After packing overnight bags and picking up their
son, Jeremy, the couple turned around and headed back to meet Rebecca. “We didn’t realize it then, but we were leaving our home in
Connecticut for good,” says Karen.
By the time he was 2 years old, Jack Baker had made some 20 trips to the emergency department and had been hospitalized about 10 times. For much of his young life, the little boy had struggled with a cough that his parents, Katie and Rick, could only describe as a barking, seal-like noise. He was often sick with colds, couldn’t sleep for all the coughing, had shortness of breath and wheezing, and had started developing a blue tinge around his mouth.
People decide to participate in a clinical trial for lots of
reasons. For 14-year-old Nick Brown, it came down to wanting to make a
difference in the world.
Diagnosed with autism at age 5, Nick has had a lifelong
aversion to hospitals, and especially to needles. Yet, when his parents told
him about a new clinical trial for a medication for kids with autism, he
decided to give it a try.